Here is an example of why the HBBB should not be a "READ ONLY" forum
*unless* you post what the HBBB "monitors" allow. There are people who
could benefit from the words of others ... I am one of those others, but I
am not welcome there. Maybe Elaine is one who doesn't want to hear anything
I have to say ... but here goes anyway, only because I care about people and
see no reason for suffering unnecessarily when there is help available.

The person who goes by the name "Elaine" has written 1149 posts into their
archives. I have something I would like to "say" to Elaine, but I'm banned
from their forum because "they" didn't want anything written about the TMJ
iatroepidemic as it applies to "how did you/we get this way" (it would not
apply to everyone in HBBB). Once it was determined that I wrote a book,
that book, I was on my way out their door; they would see to it. And they
did. It is their loss as well as mine. I am denied the opportunity to
communicate with people who might want to know what I think about this or
that ... and they are denied the opportunity to "hear/read" my words. Why?
I guess because there is great fear about a word: iatroepidemic or a book,
"The TMJ Iatroepidemic".

I have no way to know the technically correct diagnosis of what Elaine means
by "closed down with scar tissue" except that it is possible that she is
experiencing recurring ankylosis inside the joint with either bone or
fibrous tissue making it physically impossible for her to open her mouth
beyond what is now 10mm of verticle opening. Only a proper history and
physical by a qualified dental professional with imaging etc. can determine
the correct diagnosis as it applies to the patient.

I am not promoting the device made by TMJ Concepts; I am merely reporting
that it has been used successfully to treat conditions such as what Elaine
is describing. She owes herself, or someone owes her, a proper surgical
evaluation. If ankylosis is the issue, it is likely to worsen, and the
surgery to remove this "tissue" that fuses mandible to skull will only
become more and more dangerous with time.

www.tmjconcepts.com

If Elaine wants to write to me, my email address is
I know of no other way than this method to attempt delivery of this message.

The Webby



http://www.healthboards.com/ubb/Foru...ML/003203.html

> Elaine
> Senior Veteran
>
>
> Posts: 1149
> From:Montana
> Registered: Nov 2000 posted 09-26-2003 12:06 AM *** * ** **
> ------------------------------------------------------------------------
> I had surgery for a displaced disc. Two years later, I was closed down with
> scar tissue, another surgery.
> Within two years I was closed down with more scar tissue. I fought against
> having another surgery until 1997. Third surgery,there was so much scar tissue
> wrapped around the disc, it all had to be removed. Implanted with the
> Christensen Fossa. The implant has never felt right, nor has it given me any
> relief. I have had several opinions and all agree it needs to be removed due
> to loose screws. My condyle is wore down to a stub due to metal against bone!!
> I have never been able to eat right and have lost 30 pounds. My opening is now
> 10mm which is less than two fingers. The implant was supposidly going to help
> with scar tissue. The oral surgeon said, "hmmmmm! I am doing these surgeries
> every week. I could have puked on the spot. How many are neccessary?
> Definitely not the answer for "just" a displaced disc!!! I have such puking
> headaches that sometimes I wonder if I will live to see the next one. I am a
> sad, sorry, Christensen reject!!!
> Elaine
>

Maybe someone to see that this post is intended for someone in particular:
"Elaine at HBBB's TMJD forum"

http://www.tmjconcepts.com

my email:

TW

in article BB9991B5.6431%, The Webby at
wrote on 9/26/03 6:48 AM:

> Here is an example of why the HBBB should not be a "READ ONLY" forum
> *unless* you post what the HBBB "monitors" allow. There are people who
> could benefit from the words of others ... I am one of those others, but I
> am not welcome there. Maybe Elaine is one who doesn't want to hear anything
> I have to say ... but here goes anyway, only because I care about people and
> see no reason for suffering unnecessarily when there is help available.
>
> The person who goes by the name "Elaine" has written 1149 posts into their
> archives. I have something I would like to "say" to Elaine, but I'm banned
> from their forum because "they" didn't want anything written about the TMJ
> iatroepidemic as it applies to "how did you/we get this way" (it would not
> apply to everyone in HBBB). Once it was determined that I wrote a book,
> that book, I was on my way out their door; they would see to it. And they
> did. It is their loss as well as mine. I am denied the opportunity to
> communicate with people who might want to know what I think about this or
> that ... and they are denied the opportunity to "hear/read" my words. Why?
> I guess because there is great fear about a word: iatroepidemic or a book,
> "The TMJ Iatroepidemic".
>
> I have no way to know the technically correct diagnosis of what Elaine means
> by "closed down with scar tissue" except that it is possible that she is
> experiencing recurring ankylosis inside the joint with either bone or
> fibrous tissue making it physically impossible for her to open her mouth
> beyond what is now 10mm of verticle opening. Only a proper history and
> physical by a qualified dental professional with imaging etc. can determine
> the correct diagnosis as it applies to the patient.
>
> I am not promoting the device made by TMJ Concepts; I am merely reporting
> that it has been used successfully to treat conditions such as what Elaine
> is describing. She owes herself, or someone owes her, a proper surgical
> evaluation. If ankylosis is the issue, it is likely to worsen, and the
> surgery to remove this "tissue" that fuses mandible to skull will only
> become more and more dangerous with time.
>
> http://www.tmjconcepts.com
>
> If Elaine wants to write to me, my email address is
> I know of no other way than this method to attempt delivery of this message.
>
> The Webby
>
>
>
> http://www.healthboards.com/ubb/Foru...ML/003203.html
>

>

The word "few" doesn't really mean anything in particular. A very small
percentage of the whole is likely to tell more if only we could know how
many people represent the whole. If less than 1% of all the people who
complain of "TMJ" related problems could truly benefit from a surgical
procedure ... the actual number of people affected is still a complete
unknown.

The Webby

Elaine added to HBBB:

> I know we are on here trying to tell our experiences and save people from a
> life of hell but I wonder how many really listen. It breaks my heart everytime
> I see a post, "I am having surgery". Granted a "few" need it but most times,
> NOT!!! I read one post, "you make it hard to be a success story". I thought to
> myself, with this surgery, it is hard to BE a success story. There are a few
> but few and far between.
> Take care,
> Elaine

in article BB999610.6436%, The Webby at
wrote on 9/26/03 7:06 AM:

> Maybe someone to see that this post is intended for someone in particular:
> "Elaine at HBBB's TMJD forum"
>
> http://www.tmjconcepts.com
>
> my email:
>
> TW
>
> in article BB9991B5.6431%, The Webby at
> wrote on 9/26/03 6:48 AM:
>

>